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Letters to M.A.G.N.U.M.
from
Migraine Sufferers and Others

I found your web site from a letter to the editor in Newsweek regarding
the article on migraines.
I am a registered nurse who suffers from migraines and chronic daily
headaches, sometime 2-3 a week, with headaches of 14-24 hour duration.
These are often prostrating attacks that require absence from work.
To add to all of this I am an emergency nurse. Needless to say I am
insured by the same hospital I work for. I have had to come into my
own ED twice now for these HA's. It is cumbersome and embarrassing to
be treated in my place of employment. I am lucky that my co-workers
and managers are supportive. I have, as you suggested, given my manager
a letter from my neurologist stating that I am being treated for this
condition and I may have occasional absences from work. It also states
that I may need additional parental medications. Coincidentally, and
luckily, my neurologist also suffers from migraines. This leads to a
much more empathetic treatment. My main reason for writing is that I
have tried all of the prophylactic and abortive measure except for MAOI's.
I am not sure I want to go that far. My question, after all of this
rambling, is that I am on 8mg/day of Sansert for a prophylaxis and use
Imitrex SQ and intranasal DHE for abortive measure. They are about 50%
effective. I understand that Sansert can cause retro peritoneal fibrosis
and I am concerned. What symptoms do I need to look out for? I know
that proteinurea can be a late sign, but elevated BUN and creatinine
are also somewhat diagnostic. I have looked all over for this info and
cannot find out anything. I have asked three internists and a myriad
of ED physicians this question to no avail. Even the neurologist was
rather non-specific. Lastly I want you to know that our ED takes pain
relief for migraines seriously and the patients are treated well. I
attempt to be a strong advocate for my migraine patients and speak with
the docs to get pain/nausea relief for these people as soon as necessary.
If you need and ED view from a nursing angle, which is much different
than a medical angle, please feel free to use me as a resource.
Thank you for this web site and the information herein,
Sincerely,
Rob
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